Tuesday, 24 April 2018

ME Awareness Month


It's almost May again somehow, which means it is time for me to don my fundraising cap and ask you good people to give generously in aid of my chosen ME charity. This year, I have chosen to support ME Research UK because of the great work they do funding biomedical research in the hope of finding a cause, treatment, and unltimately a cure for this devasting and life-changing illness.

I'm sure that by now you all know my own story of how I became ill shortly after returning from my honeymoon in 2011 and then simply did not get better. Some of  you also know how incorrect advice given to me by Occupational Health professionals early on led to a significant worsening of my illness that left me entirely bedbound for over a year. If not, you can read about my experiences on my previous blog post here.

For now, I won't go into any more detail other than to say that we desperately need more research into this illness. It is the biggest cause of long term sickness in UK schools and yet still relatively nothing is known about its cause, or how to treat it. Most sufferers like myself are left to try and cope as best we can with no help or support from the NHS despite studies showing that people with ME have a lower quality of life than other, more prominent serious illnesses. Put simply, we are extremely ill and that makes it very difficult for us to get our message out to the wider world. We spend most of our energy just trying to make it through the day, struggling with the most basic self-care tasks. Our loved-ones and carers are similarly put upon. They spend their energy caring for and supporting us, leaving room for little else, which is why raising awareness and funds for research is so very hard for ME charities. In the past, I have dressed up as a princess to raise money but I won't be doing so this year - instead, I am hoping (health permitting) to spend ME Awareness Day attending the Millions Missing demonstration in Bristol. I've not made it to Bristol for around 5 years so it's quite a huge undertaking for me and my poorly body.

So how can you help? By one of two ways actually. You can either head over to eBay and bid on a wonderful set of princess-themed Russian dolls, donated by the fabulous Tales from the Tangled Wood, or you can simply donate whatever you can afford directly to ME Research UK via my MyDonate page. Every single penny is appreciated and I cannot express in words how much it means to me when people take the time to show their support. Thank you - and thank you for taking the time to read this too. I know it’s not a very cheery tale, but this is my life and I have no choice but to live it. Please help to give hope to me, and the many thousands of other sufferers in the UK because we really do need all the help we can get.

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